One Year

I can't believe it's been a year. It surely was a roller coaster ride for us & the whole family. I can still vividly remember how that day went. We were clueless. We knew Chase was sick. But, did not thought it could be this. We thought it was just a fever....
We were admitted in CHLA on April 1. Chase still had high fever that day. Our doctor's appt. was at 2pm. Chase was sleeping the whole morning. By noontime, I noticed the red spots in his face. We were not alarmed. We thought it was caused by his high fever... Our lives have changed overnight.

Chase is doing great. Blood counts are NORMAL. It sounds good in a way. But, for a child taking Chemo to suppress his marrow... I am not sure... ANC last Monday was 4400++ It was always been above this level since he started Maintenance. He got vincristine, LP & started another 5 days of steroids. We will still giv Dex through his port & 6-mp orally. They are still monitoring his 6-tg levels. Trend was going down. But,, they said it is still therapeutic. I really need to clarify a lot of things with his doctor...still confused on the values we are getting.

Thank you for praying :)

Still here

I haven't had the chance to update recently. Everything is going great with Chase. except for some hiccups (ER Trip) here & there. We are still going to the hospital weekly for his Methotrexate. His counts are normal values. His ANC over 5000 for a few months now. They are still monitoring his 6-mp blood values every month. So far, it seems that he is getting enough 6-mp. But, why the very high ANC?? hmm... Can't get a straight answer from his oncologist.
Thank you for your continued prayers.

Happy New Year!

We had a wonderful holiday. It was nice to spend time with my family. Chase is also feeling great. I can't believe that it has been 9 months since he was diagnosed. 2009 was certainly an unforgettable year for us.

We had an early appt. at the hospital on Jan. 4. Chase had an LP procedure, doctor's appointment and Vincristine. He also received his first dose of IV Dexamethasone. They left his access open so we can give him his 5 day steroid pulse. We have to give him 2 doses via IV every day for 5 days. As for the weekly Methotrexate, the doctor opted to give it IM (Intramuscular Injection) instead of IV to preserve his port. 6-MP will still be given orally daily. They took extra blood again to check his levels & will make a decision if the values are lower.

His counts are all great. Normal values actually. However, this is a bit tricky since we know that he does not take his chemo regulary. Some kids can get normal values even on chemo. But, this can also mean that he is not getting his needed dose.