4-27-09 Clinic Appt.

We went to CHLA for his regular Monday doctor's appt. & chemotherapy.

As usual, Chase was not happy to be in the hospital. He is a screamer. They changed the dressing of his PICC line, blood work & met with Dr. Freyer. He told us that his weakness is due to the Chemotheraphy. Also, stressed to us to keep him active and to try to give chase more protein & avoid salty foods. Dexamethasone caused his weight gain. Mostly to his face and stomach. He now has a round full face & round belly. This medicine makes him hungry all the time and crave for salty foods.

Another trip to the hospital this week

We just noticed that Chase is having a hard time walking. He is limping & does not want to walk at all. He would cry if you ask him to & would extend his arm for us to carry him instead. I called the hem/onc fellow on call and they want us to come in.

We went to the ER & had him checked. The ER took his vital signs & blood. The hematologist told us that there can be 2 reasons for this.
1. Sign of infection
2. Side effect of the Chemotheraphy - Vincristine or Decadron.

The hematologist checked his leg & hips for swelling & redness, the signs of probable infection. Everything was ok so they sent us home. We were at the ER for 4 hours today. Chase was crying hard just being in the hospital. We would tell the nurses Bye-bye.

4-22-09 day hospital appointment

Chase is still pale & weak. The hospital took blood for test. As expected, his hemoglobin count was lower. It is 6.9 compared to 7.7 last Monday. We were at the hospital for 4 hours today for the blood transfusion. Chase has more color when we left the hospital.

We already know that his Hemoglobin was low yesterday. But, the doctor decided not to give him transfusion to see if it will rise on its own. He became pale & lethargic today so we decided to give the clinic a call. They gave us an appointment for tomorrow and is scheduled for Blood transfusion.

We just finished the second clinic appointment at CHLA. We were there at 11:00 AM for our 12:00 chemotheraphy -Vincristine & a doctor's appt.

They also changed his dressing for PICC line. Chase was crying hysterrically that his nose bled a little bit.
His counts were also low. But, they did not give him transfusions to see if it will rise on its own.

Chase's new haircut!

We finally decided to cut Chase's hair today. I feel really bad because I love his long hair! The doctor already warned us about the increase of appetite. He was not kidding! Chase is always hungry. Look at the proof.

Chubby steriods cheeks.

It was the first Clinic Appointment today. Our appt. is at 6 AM & we made it on time. He is scheduled for Bone Marrow Aspirate & Lumbar Puncture with chemotherapy. He also has a doctor's appt. at 12:30 & another chemotherapy-vincristine after that.
When we got to the clinic, they first drew blood from his PICC line. We found out that his platelet count is only 7,000. So, he needed platelet transfusion prior to the procedure.