My Story

I have created this blogspot to update everybody on Chase's condition. On April 3, 2009, He was diagnosed with Acute Lymphoblastic Leukemia (ALL), a type of blood cancer. We need your continued prayers for his healing!!

Sunday, July 12, 2009

Port Surgery & Lumbar Puncture

We were scheduled for a port placement, Picc line removal & lumbar puncture with chemotherapy last Wednesday. The OR admitting called me on Tuesday & said that Chase is scheduled for surgery at 5:15 PM. He has a late schedule because he has VRE. He needs to be in isolation & the last patient in the OR. Yes, they did not make a mistake. It is 5:15 PM. I freaked out. Because it means, no solid foods including milk after midnight and clear liquids only (water, juice) before 2 PM. For those of you who do not know, Chase does not drink Juice. Giving him juice is like giving him medicine. He can live without other solid foods. But, he needs MILK. How can I explain to a 2-1/2 year old that he can't have MILK? I called our nurse case manager and tried to get a re-schedule. But, she said that they can't do anything because he has VRE.
Vancomycin-resistant enterococci (VRE) are a type of bacteria called enterococci that have developed resistance to many antibiotics, especially vancomycin. Enterococci bacteria live in our intestines and on our skin, usually without causing problems.
Enterococci bacteria become a problem when they cause infection. These infections can occur anywhere in the body. Some common sites include the intestines, the urinary tract, and wounds. For some people, especially those who are weak or ill, these infections can become serious.
Vancomycin-resistant enterococci infections are treated with antibiotics-the types of medicines that are normally used to kill bacteria. VRE infections are more difficult to treat than other infections with enterococci because fewer antibiotics are effective against the bacteria. VRE, like many bacteria, can be spread from one person to another through casual contact or through contaminated objects. Most often, VRE is spread from the hands of a health professional to a patient in a hospital or other health care setting. VRE is not usually spread through the air like the common cold or flu virus unless you have VRE
pneumonia and are coughing, which is rare.
If you are healthy, your chances of getting VRE are very low. Even if you have been exposed to VRE, or have VRE in your body, you are not likely to get an infection. VRE infections generally only occur among people who have weakened
immune systems, such as people with long-term illnesses or people who have had major surgery or other medical procedures and have been treated with multiple antibiotics

I gave Chase milk at midnight to make sure he is full. I got a call in the morning from admitting & asked us to come in earlier. They told me they will try to take him in earlier. So, we went and was in OR admitting room from 10am to 5pm. Chase was really unhappy. He cried several times asking for milk & just fell asleep crying. Imagine being in a small room for 7 hours and doing nothing. He did not eat or drink the whole time. They called us up to OR Pre-OP room at 5pm. We stayed there for an hour. I'm glad there was TV to at least cheer him up. But, he would still cry and ask for milk. He did not cry hard. I think he does not have energy at that point. He has not taken anything in for 18 hours.
Surgery was 2 hours long. We had dinner and waited in the cafeteria. The pager vibrated & we hurried to the recovery room. Chase was already awake when we got there. He was crying hard and the nurse was trying to soothe him. He did not stop crying till I took him from the nurse. In his past procedures, he was always asleep when we get to the recovery room.
Surgery went well. We left the hospital at 8:25 pm. We missed the doctor's appointment today and was re-scheduled for tomorrow noon. So, another day in the hospital. I will post a picture of his Port soon.

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