5-11-09 Procedure

Chase had another Lumbar Puncture with Chemotherapy (Methotrexate) today. This is the 2nd of the 4 doses for this month. We arrived at CHLA few minutes past 6 am. We told the nurse practitioner & doctor that he had a low grade fever (100.4) last night. They questioned us why we did not call. I am just confused on the different information given by the nurses at Urgent care. They still went ahead with the procedure because his counts were really good.


We went to the clinic right after for our 9:30 am appt. with Dr. Freyer. We informed him that we decided to enroll chase in the clinical trial. We went back to the waiting room for the randomization result & medicines. Dr. Freyer called us back & informed us that the information he explained & trial we signed for (SR-Low) was not actually for chase. He thought that chase falls into the Standard- Low risk group. But, actually he is at Standard- Average risk group when he took his chromosomes result into account. He does not have the favorable chromosomes to classify him as standard - low risk.

After an hour or so, we were informed that he was randomized to Standard protocol. They changed his dressing, gave him his chemotherapy (Vincristine) through his PICC and antibiotics because of the fever. They also took blood for culture.