Chase is feeling better compared to the first week of Steroids. Giving the ARA-C was easy. But, the 6-TG is a problem. Knowing that he can't have any dairy with this, mixing with milk was out of the question. During the first night, we crushed the pill and added a small amout of chocolate syrup. It was just enough to cover the powder on a spoon. It was about half teaspoonful. After an hour of crying, time out and spitting, he swallowed. We were glad & thought we could use this trick again. But, he struggled more & has not cooperated since. We tried soy milk which I am not sure if it has Xanthine Oxidase, the enzyme that interferes with 6-TG. I also bought the rice milk. He did not like that either. So, we are back on using a syringe and forcing it on him. I can't understand how he still manages to spit it out if the amount is less than 2 ml with thick consistency. It also does not help when he sees us with mask and gloves.
We are due back in the clinic on Monday for a dressing change. He will also start another 4 rounds of Ara-C. Dr. Freyer said that we should expect his counts to drop starting next week.
Please pray that he does not get sick because it will be another hospital admission.
Grilled Keta Salmon (Yakisake)
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*Salmon has never been a staple fish in our household. It's more pricey
than other fish in the market and has a very distinct flavor that I believe
is an ...
6 years ago
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sherry, my heart goes out to you...i can just imagine how difficult this is, and most especially the stress on Chase. Giving meds to kids are doubly hard! We're always praying for you.
ReplyDeleteHey She, Wenn. Hold on and be strong. We (Amy and me) both pray for his health. We wish we can be there to help you guys through it all.
ReplyDeleteI'm glad that there are a lot of people praying for you and helping you throughout this ordeal. May God bless Chasey always and give him health.